Remembering Jordan

At this very moment, two of my friends are preparing to lay their forever 4-year-old daughter to rest. This should never be the case. 2017 has been a particularly difficult year for many of my closest friends. Too many of them have had to say goodbye to their children in spite of the fact that for the first time in history there is a viable treatment for SMA. It is not right and it will never be okay for a parent to have to bury a child regardless of the cause. Today my heart is heavy for Jerry and Brieen as they say their final goodbye, here on earth, to their sweet daughter Jordan. Jordan will be remembered as one tough cookie, brimming over with sass, a smile that could melt the hardest of hearts, and eyes that shone brighter than the brightest star in the sky. Her time was short but her mission was clear; change what is known about SMA. She brought hope to this world and even though she may be gone her mission of hope will live on in the hearts of hundreds, if not thousands, of people who knew of this little spitfire. Jordan, you have touched my heart and will live on as I promise that you will never be forgotten...not by me, not by Brenda, not by the nurses, RTs, PCAs, OTs, PTs, doctors, and on and on at Nationwide Children's, and really anyone who was ever blessed enough to really know you and your incredible parents... You will live on in the hearts and minds of so many people Jordan. Keep sending us ❄️snowflakes❄️, okay 👑sweet princess👑?